Shocking neurology experience Many subscribers have contacted us regarding their shocking neurology experience. As all our other pages only allow specialists to comment we have not posted any of these comments, however we felt it important not to ignore the issue and dedicated this page to allowing you, the patient / client / consumer to tell your story. Unfortunately sometimes people have bad experiences with neurologists.
Additionally, neurologists can add their comments to give their point of view so that all of us can gain a new perspective on what bothers neurology patients, what bothers neurologists, where misunderstandings occur, why they occur and how we can prevent others from having a shocking neurology experience. Top shocking neurology experienceI am a 22 year old woman from the West Coast. I was feeling perfectly fine except for headaches which I presumed were stress-related. In any case I went to the neurologist to be on the safe side and he said my exam was basically normal with some minor differences in my reflexes from between sides. I told him that I had had an abnormal VEP test a while back and therefore was sent for an MRI which I didn't do because I had felt fine at the time. He said there was no harm in getting the MRI and sent me for one telling me to come back with the scan.
A week after the MRI, I felt great, had taken time off to relax and now had no headaches. I arrived home to find a letter waiting for me saying stuff about T2 and FLAIR lesions followed by...."these changes are consistent with Multiple Sclerosis and immediate referral for full investigation should be arranged". I saw my future, wheelchair-bound, incontinent, blind (I know deep-down that this is not really what MS is) and was soon in such a state I found it difficult to stop crying long enough to pick-up the phone to my neurologist. He saw me the next morning and looked at the MRI. "Wow" he said...they've exaggerated a bit with this answer. He said that it was "PVL" which is common in people born prematurely. Well, when the neurologist had asked me if my birth etc had been fine I said it had 'cos I didn't really think about it....what I had not told this neurologist was that I was born at 29 weeks gestation! I cannot tell you how relieved I was...but then I was very angry that the radiologist had written such an insensitive answer and that the answer had been mailed to my apartment for me to read with no-one there to explain. My message is don't open MRI results without some-one around to explain it to you! Your turn to have your sayShocking neurology experience?
|
